*I shall warn you now. I’m very medicated. If this is incomplete, I’ll be re-editing or whatnot. LOL.*
We got up for driving to surgery about a half an hour late, which only basically curtailed my shower. I WAS bummed about that because I can’t really shower until tomorrow and I think it would feel so good on my sore, tired muscles. Ah well, my heating pads, coffee that I haven’t been able to have in a MONTH, and pain killers seem to be getting along nicely so far today. I woke up stupid early. But we had a huge storm, I needed meds, and I wanted coffee! So, I hobbled out and made my coffee and rested with eyes closed while my sun lamp worked its happy magic on my brain. Then Nolan helped me, my coffee, my heating pads, and stack of writing, camera to upload pics, and phone to charge, get re-situated in bed.
I’ve been hanging out here since. It’ll be med and nap time soon enough but I’d like to get some of my writing off the list, so that more staring can commence. Yes. Even in sick bay, I make to do lists. I ought to address this with myself. Later. So lets talk about yesterday! Everybody wants to know- everybody has gotten different snippets, so I’ll just write a short narrative of the day.
We had to go up to Sioux Falls Sanford Surgery Tower insano-early. But, Eva woke up before I left. I explained to her why we were wearing teal and pink, in simple terms, “These are the colors that will help me get better! What’s why we’re all wearing them!” and let her wear one of my special necklaces since she had been worried a LOT lately. Most kids know whats going on if you pay attention. But we tried to keep this simple for her because, I didn’t want to be scaring her or worrying her more.
Anyways, all the beginning nurses had the “I’ve been up far too early”, plastered smiles and speaking voices. But all went well. My anesthesiologist doctor left Nolan and I baffled. Nolan humorously even admitted as to why. Had NOTHING to do with my meds or the procedure. We were both just awestruck because he had the best skin in the world and obviously worked out but not in that “I’m overly lean and thin” OR “I am WAY TOO BUFF way.” As soon as the guy left the room, Nolan burst out “What does he EAT? How does he work out? What’s his skin care regimen? Because he looks too fantastic!!!” It was hilarious!
Anyways. Moving on from our skin care crush on holy hot Asian doctor. Iv’s were started, pain and relaxing meds given, the surgeon talked to us. Nolan’s Chirpy Happy Nurse Liason about my surgery came in and introduced herself and she had great hair. It was starting to get weird how many people looked all astounding. Then it was time to move. Nolan got to head to a special place where you apparently get to watch text updates of what stage of surgery someone is in and the times they will be expecting to move on. I’m sure this and Chirpy Happy Nurse Liason made his day, lol.
So I had humorous or weird pre and post op moments. As they were putting my monitors on me, starting my pain, sleep, etc., meds, and oxygen, I had my final moment of fear right then. I sat and thought ‘This just HAS TO go right. No matter what. I’ve fought too hard. I have to wake up in a better place. To me, there is no other option.’ Apparently we had gotten lucky too. Very lucky. Things had started to spread and attach to my stomach. I will NOT get more graphic than this. The deal is when cysts, tumors, or cancer move to your stomach or renal areas in massive quantities….
YOU GO HOME AND WRITE A WILL.
Only a small amount and started to spread and it was more endometriosis type tissues than cysts and tumors, but that is still scary because it can weaken the walls so much that it is very easy to spread everything and anything. Glitter power rocks. I was determined to have this surgery, get these things out of me so we could move to the next stages of recovery. But truly, if I and about 800 others had not so fervently believed that I would get better, even this stage could have gone badly. I was determined we were going to have a successful day.
Next two funny stories. Now that we know that the surgery was right in the nick of time. Right before surgery, as monitors were being attached, hot Asian doc, and I were discussing hilariously the good points of the beaches and tacos served in different parts of Mexico. I remember saying, right before I went under “Won’t it be nice when I can FINALLY eat again? Sighhhhhhhhhh………..zzzzzzzzzzzzz”
When I woke up, the recovery nurse very gently asks me “Do you know who you are? Do you know where you are?> Do you know what just happened?” As per usual. This is the funny part. I stared at her for a minute and said hoarsely (the meds and breathing tube did a real number on my throat) “No. No, I really don’t. Can, can I have some ice? Maybe I’ll remember then?” After a few ice chips, I knew my name, where I was, and that I was out of surgery. I was also, of course, freezing, so I was COVERED in the warmed blankets. Suddenly my pain and nausea which had been at a low 5 or 6 in scale spikes. So I get meds. And I am itching everywhere, so I get meds. Then my pain and nausea, blissfully start to go away, and I had been watching the clock to make myself focus on becoming alert.
OUT OF NO WHERE, TWO MINUTES LATER EXACTLY, my pain and nausea spike to a crazy over 10 level and she got back super fast and I’m gasping “I don’t know what happened! But, but, but I hurt everywhere suddenly and want to vomit ice everywhere!!! Help!” She gets some different meds into me fast and in 5 minutes, everything starts to decline to tolerable. We waited another 45 minutes before I went back to a recovery room with more pain and nausea meds, ice chips and saltines. I couldn’t go home without keeping those things down and getting my iv done.
I had a young, funny nurse who didn’t have the “I have a happy surgery smile” plastered on. I worked on getting my teeny bit of food and liquid down, had to pee for them, then got another dose of pain meds, my iv pulled and sent home with all sorts of directions. We had a short visit with Jenn, who had brought Nolan some McDonald’s since he was starving and me lots of bubbly smiling. I texted and made phone calls as we went home to lessen that load for later.
I actually felt remarkably better by the time Eva’s soccer practice was over- so WE ALL ATE- EVEN ME!!! I managed those parmesan bread bites from Dominos whilst everyone munched on pizzas, then, since it was late it was bed and bath time for everyone. I was shocked. But, the dr and I had my post surgery talk and not only am I underweight but severely malnourished according to my blood work and I had this moment where I wanted to shriek “I haven’t been able to eat for 4 months due to meds and sickness. Gee. REALLY?” But we talked over the surgery, my recovery plan, and what we could do to rectify being malnourished, which like I say “DUH.” So that’s fab.
Sleep last night wasn’t too fun but it was better than I’d gotten in a month. It wasn’t fun because I needed to wake up to drink, go to the bathroom, take meds, or re-position myself because of pain that there was nothing I could do about. I cannot shower until tomorrow and I can’t wait!!! I was so excited for coffee again this am, it was ridiculous. Sipping away at it as I made, yes, to do lists, posts, emails, etc, was happy. I’m so sore and tired but happy to be home. And I’m really thrilled to have finally gotten to take the first BIG step in recovery.
All day yesterday, people wore pink or teal, painted their nails pink and teal (with glitter, natch), made me get well signs and sent me the pics on Facebook, my phone, or email. It was so sweet. Thank you. It’s been a lonely few months. Seeing that kept my spirits up! I’m sure I will have more to write later but really. I must nap. Mwah!
Sara Rose






[...] Thanks to Sara, who not only wrote a great guest post for me, she did it while battling cancer. [...]
I am so, so, SO happy that the surgery is done & that things went so well. I can only imagine how relieved you must be, considering how relieved I am FOR YOU!
Know that the surgery doesn’t mean an end to support & good glittery mojo! We are her for you!
(And you are my glitter tornado…no matter what you think!)
B
Glitter Ninja S!
Go Sara – glitter power sounds like it’s taking very good care of you. Thinking of you so much, much love Linda xx
Take good care of yourself & get well soon. So glad to find out that things went well.
me too. hugs. rest and mend. love and hugs.
yeah, I had to wait 10 days before I could bath or shower so you are LUCKY
So glad that it went well!
I think it’s so amazing that you encouraged Eva to wear teal and pink and allowed her to wear your special necklace. A special moment for both of you:-) She is really growing up into a beautiful little girl:-) I still have the first picture you sent me of her and Santa framed beautifully.
I am so glad to hear that the surgery was just in the nick of time before it spread any further. I think of you often as you recover and heal. My nails are still pink for you!!!
Thanks for the post surgery follow up. I loved the little details.
Sending love from East Tennessee,
Rosie
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